RESPONSES TO YOUR QUESTIONS FROM LAST POST A lot of people had similar questions so I'm just going to give an update and answer the ones I remember. First of all, Frank B, I screen the comments and clear them when I have time. It's a leftover from the days when a gang of successful scary channels were harassing me in the comments. Second for Frank, our show email is talked about by Henrey at the end of every episode, and is scarystoriesnyc @ gmail.
OK well the medical gastro team did not lie to me, but they admit they are confused that they didn't find cancer. I have growths on three different organs down there and in their world that has always meant only one thing, the worst news possible. However, when they came to talk to me today, they were confused enough to ACTUALLY LISTEN to my side of it.
I'm going to try to avoid too graphic or personal stuff here, but I have to get into some details for it to make any sense.
This all started for me when I hurt myself in bed one night. I felt like I hurt my lower back at the very bottom. In the morning, I had a limp, my left side was numb, and my butt was too narrow for the toilet seat!!?? Something had changed. But it kept changing over the next few days, and i figured it would get better.
That was LAST OCTOBER.
It settled as my left arm only remaining a tiny bit numb at the fingertips, my left leg more numb, and both legs weak and swollen. My friend Ellen eventually got me to an emergency room where they looked for blood clots to see if there were immediate issues, then told me to get a primary care doctor which I did. She put me on one of those pentaprazole stomach meds, I've been on variations of them since. Not sure if they do much because the gut pain and acid reflux started getting worse. This was when the show here started to come out less often, I was too sick to focus.
At this point, mu primary care doctor canceled my appointment and I couldn't get another for almost a month. I got a LOT sicker in that time. When I saw her again I really wanted to tell her I was convinced the central issue was either related to my spine or hips or maybe a pinched nerve. When that happened, my legs used to supporting me when I was over 200 pounds were not how I was walking. I was having to mostly move using my weak belly core muscles. Which happen to be located in front of my gut, where I was nauseous and getting acid reflux at night. I say I WANTED to tell her but she cut me off and barked, "DON'T TELL ME YOUR THEORIES! TELL ME THE SYMPTOMS!" But she did set me up to see a gastro guy and Some kind of pneuro something.
By now I had no positions left it was safe to sleep or even sit in. I wasn't sleeping or eating. I lost over fifty pounds and a lot muscle mass. When I got in to see the gastro person I was moaning in pain and they thought i was having a heart attack. They rushed me to an emergency room and eventually I ended up in one hospital, then this one I'm in now. They discovered I also had pneumonia. They put me on IV liquid food to save my life and re-nourish me. They took the pain away in the stomach and I was pain free.
They started moving my body inside of loud machines and looking at my insides, and they discovered lumps on three different organs, so they were instantly convinced of cancer. They told me I had a year or two left to live while still waiting for the biopsy to come in, they were that convinced.
So now tomorrow I agreed to go in and let them take more samples since they are so baffled by the first results. But I told them my theory that whatever is making my legs weak and swollen is also overworking my stomach area and the lumps are a result of the situation.
Well the one doctor was following along and finishing my sentences, it explained what was happening better than the other theories. They are going to find a doctor for me to see who can get to the bottom of this, figure it out. If it can be fixed by popping a bone or two back into place, I bet that would also fix most or many of the other issues, just my guess. And if they figure it out but can't fix it, at least we'll know WHY and HOW I will need to re-learn to walk in Physical Therapy.
Because being in the hospital bed, I"m now needing to use a walker and I'm grateful to be able to stand up at all.
So tomorrow they knock me out and take samples but if I can start to see someone about my back and hips, it's worth it.
So now I finally feel listened to and it's exciting but scary. Could still play out in any number of different ways.
Wish me luck for tomorrow. The last time they did this, I woke up from surgery moving back and forth between Jeckyll and Hyde personalities, and I couldn't remember what Hyde said or did. My roommate was here acting annoyed at me and I didn't know why. She complained that my texts were getting too crazy and I was feeling insulted. Finally she showed me one of the texts and told me to stop lying and denying.
It was a text saying I was scared to be in the hospital alone because all the nurses were racist! I not only didn't remember writing it, I couldn't figure out what it was in reference to. My roommate and I looked at each other and realized we were BOTH telling the truth!! I was doing crazy stuff and not remembering doing it!
Back then I was on an IV and needed help to stand up, could not yet stand on my own. Yet somehow that night I found myself walking around in the hallway with my iv trying to apologize to nurses for calling them racist LOL! They just ignored me, they knew it was the after effects of the anesthesia. When the gastro team came in to see me, they said they had seen this before and IT EXACTLY RESEMBLES DEMONIC POSSESSION which is a heck of a cool admission from a doctor team. These guys are cool, smart and open-minded. My sister then told me that after one of her pregnancies she woke up demanding scotch and cigarettes when she was a school teacher who attended church regularly on Sunday. I tell you, I'm more afraid of the anesthesia after effects tomorrow than the actual procedure, since I trust the surgeon, he is the best in NYC at this sort of thing and has a very kind bedside manner.
Hope that wasn't too personal, but some of you guys seemed curious and I thought it was time to start being less mysterious.
PAIN UPDATE So I was told I had terminal cancer. I was told I had a year or two max to live. I was told the cancer was spreading. This went on for weeks. Then biopsy results came in and no stomach cancer, no proof of pancreatic cancer. They are debating whether to get more pancreas to test or to image it again, they still really want cancer to be there it seems. Tonight I feel really sick but they won't give me anything for it. Ive been on daily drugs to drain my swollen legs which are too heavy to walk but the drug didnt work and they couldnt get blood to check for blood sugar either. My body is shutting down.
They took me off intravenous food today but i'm too sick for solid food or even liquid so i'm going to get malnourished like when i first got here. I'm going to need to fast days until i get pain meds. i was out of pain and happy but the people hink i should be in pain, so boy am i ever. it hurts like it did when this started even though all the pain was gone.
Things hurt so bad i can't even describe. i wish life could be over. My friends all tell me I'm crazy but all i do is sit and cry in pain as they critique me. This is the worst pain of my life when i had been out of pain. Pray for me to be released from this world soon. Pray for me to escape the pain.
I was supposed to be operated on yesterday, now they say it might be today. Thank you guys for getting us to 20k subscribers! I miss you guys so much, and Dogman too. If this is successful today, it will be step one in getting me out of the hospital and back to work.
Well, this week I go in to start having procedures done. I'm supposed to see three specialists for five procedures, and we hope to finally know what's been wrong with me for so long. When I chose to start this channel, I thought it would be something I could do no matter if I was sick in bed. I had not bargained on whatever this is that's afflicting me now. The nurses all tell me I'm going to be fully cured, so let's hope they know what they're talking about. I miss you guys SO MUCH
Well, I saw the doctor and it was horrific. She shouted at me, and she didn't seem to understand anything I told her. She charged me a ton of money, ignoring my insurance, but she cleared me to book appointments with doctors to look at my legs and back and gut. She told me they're going to sedate me and then go inside my body to look for ulcers and cancer, which has me very stressed out. I'm not booking any appointments until they fix my insurance. If and when that gets taken care of, then I'll do the next thing.
This is getting worse and worse, and I'm sicker now than before I saw the doctor. I mean I'm REALLY sick now, can't eat, unable to sleep or anything.
UPDATE: I've been staying at my friend Ellen's place up in the Seinfeld neighborhood, but I have not been doing very well. Her elevator operators tell me I look very bad. Tomorrow, I go back to the hospital to see the doctor. Things are not good right now. Things have been better. Please consider including me in your prayers.
Scary Stories NYC
RESPONSES TO YOUR QUESTIONS FROM LAST POST
A lot of people had similar questions so I'm just going to give an update and answer the ones I remember.
First of all, Frank B, I screen the comments and clear them when I have time. It's a leftover from the days when a gang of successful scary channels were harassing me in the comments. Second for Frank, our show email is talked about by Henrey at the end of every episode, and is scarystoriesnyc @ gmail.
OK well the medical gastro team did not lie to me, but they admit they are confused that they didn't find cancer. I have growths on three different organs down there and in their world that has always meant only one thing, the worst news possible. However, when they came to talk to me today, they were confused enough to ACTUALLY LISTEN to my side of it.
I'm going to try to avoid too graphic or personal stuff here, but I have to get into some details for it to make any sense.
This all started for me when I hurt myself in bed one night. I felt like I hurt my lower back at the very bottom. In the morning, I had a limp, my left side was numb, and my butt was too narrow for the toilet seat!!?? Something had changed. But it kept changing over the next few days, and i figured it would get better.
That was LAST OCTOBER.
It settled as my left arm only remaining a tiny bit numb at the fingertips, my left leg more numb, and both legs weak and swollen. My friend Ellen eventually got me to an emergency room where they looked for blood clots to see if there were immediate issues, then told me to get a primary care doctor which I did. She put me on one of those pentaprazole stomach meds, I've been on variations of them since. Not sure if they do much because the gut pain and acid reflux started getting worse. This was when the show here started to come out less often, I was too sick to focus.
At this point, mu primary care doctor canceled my appointment and I couldn't get another for almost a month. I got a LOT sicker in that time. When I saw her again I really wanted to tell her I was convinced the central issue was either related to my spine or hips or maybe a pinched nerve. When that happened, my legs used to supporting me when I was over 200 pounds were not how I was walking. I was having to mostly move using my weak belly core muscles. Which happen to be located in front of my gut, where I was nauseous and getting acid reflux at night. I say I WANTED to tell her but she cut me off and barked, "DON'T TELL ME YOUR THEORIES! TELL ME THE SYMPTOMS!" But she did set me up to see a gastro guy and Some kind of pneuro something.
By now I had no positions left it was safe to sleep or even sit in. I wasn't sleeping or eating. I lost over fifty pounds and a lot muscle mass. When I got in to see the gastro person I was moaning in pain and they thought i was having a heart attack. They rushed me to an emergency room and eventually I ended up in one hospital, then this one I'm in now. They discovered I also had pneumonia. They put me on IV liquid food to save my life and re-nourish me. They took the pain away in the stomach and I was pain free.
They started moving my body inside of loud machines and looking at my insides, and they discovered lumps on three different organs, so they were instantly convinced of cancer. They told me I had a year or two left to live while still waiting for the biopsy to come in, they were that convinced.
So now tomorrow I agreed to go in and let them take more samples since they are so baffled by the first results. But I told them my theory that whatever is making my legs weak and swollen is also overworking my stomach area and the lumps are a result of the situation.
Well the one doctor was following along and finishing my sentences, it explained what was happening better than the other theories. They are going to find a doctor for me to see who can get to the bottom of this, figure it out. If it can be fixed by popping a bone or two back into place, I bet that would also fix most or many of the other issues, just my guess. And if they figure it out but can't fix it, at least we'll know WHY and HOW I will need to re-learn to walk in Physical Therapy.
Because being in the hospital bed, I"m now needing to use a walker and I'm grateful to be able to stand up at all.
So tomorrow they knock me out and take samples but if I can start to see someone about my back and hips, it's worth it.
So now I finally feel listened to and it's exciting but scary. Could still play out in any number of different ways.
Wish me luck for tomorrow. The last time they did this, I woke up from surgery moving back and forth between Jeckyll and Hyde personalities, and I couldn't remember what Hyde said or did. My roommate was here acting annoyed at me and I didn't know why. She complained that my texts were getting too crazy and I was feeling insulted. Finally she showed me one of the texts and told me to stop lying and denying.
It was a text saying I was scared to be in the hospital alone because all the nurses were racist! I not only didn't remember writing it, I couldn't figure out what it was in reference to. My roommate and I looked at each other and realized we were BOTH telling the truth!! I was doing crazy stuff and not remembering doing it!
Back then I was on an IV and needed help to stand up, could not yet stand on my own. Yet somehow that night I found myself walking around in the hallway with my iv trying to apologize to nurses for calling them racist LOL! They just ignored me, they knew it was the after effects of the anesthesia. When the gastro team came in to see me, they said they had seen this before and IT EXACTLY RESEMBLES DEMONIC POSSESSION which is a heck of a cool admission from a doctor team. These guys are cool, smart and open-minded. My sister then told me that after one of her pregnancies she woke up demanding scotch and cigarettes when she was a school teacher who attended church regularly on Sunday. I tell you, I'm more afraid of the anesthesia after effects tomorrow than the actual procedure, since I trust the surgeon, he is the best in NYC at this sort of thing and has a very kind bedside manner.
Hope that wasn't too personal, but some of you guys seemed curious and I thought it was time to start being less mysterious.
5 months ago | [YT] | 41
View 21 replies
Scary Stories NYC
PAIN UPDATE
So I was told I had terminal cancer. I was told I had a year or two max to live. I was told the cancer was spreading. This went on for weeks. Then biopsy results came in and no stomach cancer, no proof of pancreatic cancer. They are debating whether to get more pancreas to test or to image it again, they still really want cancer to be there it seems. Tonight I feel really sick but they won't give me anything for it. Ive been on daily drugs to drain my swollen legs which are too heavy to walk but the drug didnt work and they couldnt get blood to check for blood sugar either. My body is shutting down.
They took me off intravenous food today but i'm too sick for solid food or even liquid so i'm going to get malnourished like when i first got here. I'm going to need to fast days until i get pain meds. i was out of pain and happy but the people hink i should be in pain, so boy am i ever. it hurts like it did when this started even though all the pain was gone.
Things hurt so bad i can't even describe. i wish life could be over. My friends all tell me I'm crazy but all i do is sit and cry in pain as they critique me. This is the worst pain of my life when i had been out of pain. Pray for me to be released from this world soon. Pray for me to escape the pain.
5 months ago | [YT] | 58
View 34 replies
Scary Stories NYC
I was supposed to be operated on yesterday, now they say it might be today. Thank you guys for getting us to 20k subscribers! I miss you guys so much, and Dogman too. If this is successful today, it will be step one in getting me out of the hospital and back to work.
5 months ago | [YT] | 185
View 22 replies
Scary Stories NYC
20,000 SUBSCRIBER SPECIAL ONLINE NOW at https://youtu.be/Kcj1AVcWXqk ENJOY!
5 months ago (edited) | [YT] | 149
View 4 replies
Scary Stories NYC
Well, this week I go in to start having procedures done. I'm supposed to see three specialists for five procedures, and we hope to finally know what's been wrong with me for so long. When I chose to start this channel, I thought it would be something I could do no matter if I was sick in bed. I had not bargained on whatever this is that's afflicting me now. The nurses all tell me I'm going to be fully cured, so let's hope they know what they're talking about. I miss you guys SO MUCH
5 months ago | [YT] | 103
View 20 replies
Scary Stories NYC
Well, I saw the doctor and it was horrific. She shouted at me, and she didn't seem to understand anything I told her. She charged me a ton of money, ignoring my insurance, but she cleared me to book appointments with doctors to look at my legs and back and gut. She told me they're going to sedate me and then go inside my body to look for ulcers and cancer, which has me very stressed out. I'm not booking any appointments until they fix my insurance. If and when that gets taken care of, then I'll do the next thing.
This is getting worse and worse, and I'm sicker now than before I saw the doctor. I mean I'm REALLY sick now, can't eat, unable to sleep or anything.
Sorry for the bad news.
6 months ago | [YT] | 97
View 27 replies
Scary Stories NYC
UPDATE: I've been staying at my friend Ellen's place up in the Seinfeld neighborhood, but I have not been doing very well. Her elevator operators tell me I look very bad. Tomorrow, I go back to the hospital to see the doctor. Things are not good right now. Things have been better. Please consider including me in your prayers.
6 months ago | [YT] | 135
View 31 replies
Scary Stories NYC
The Green-Eyed Werewolf ONLINE NOW https://youtu.be/O6-FbTSL03c ENJOY!
6 months ago (edited) | [YT] | 141
View 2 replies
Scary Stories NYC
New episode ONLINE NOW! https://youtu.be/4MqHBlAdwzg ENJOY
6 months ago (edited) | [YT] | 131
View 1 reply
Scary Stories NYC
New 1 Hour Dogman episode including the all-new "Dogman Made Me Cry" https://youtu.be/he_RjKUvIMQ ENJOY!
6 months ago | [YT] | 165
View 1 reply
Load more